When a family member starts asking the same question three times in an hour, or gets lost driving a route they’ve taken for thirty years, what follows is often a combination of fear (what if something horrible happens?) and uncertainty (what do we do about this?)
Families come to me at this point, sometimes already convinced they know what’s happening, and sometimes terrified to find out. What nearly all of them share is this: they have no idea where to begin.
That’s what this blog article is for. Whether you’re a clinician helping a family navigate next steps, or a family member trying to figure out what to do, here’s what a good dementia evaluation actually looks like — who’s involved, what happens at each stage, and how to get started in a practical, concrete way.
A good dementia evaluation isn’t a single test. It’s a coordinated process that unfolds across time, providers, and honest conversations.
The first and most important step in a dementia evaluation is a visit with the primary care provider (PCP). This is where we rule out, or address, medical, physiological, and medication-related causes of cognitive change that can often be treated.
At this visit, the PCP will typically:
Sometimes, simply adjusting medications, treating an infection, or correcting a vitamin deficiency can significantly improve cognitive changes.
When issues like Alzheimer’s disease or another dementia are still suspected after this workup, the PCP can then refer to specialists for further evaluation.
If you’re preparing for this first step, you can help by:
From here, the PCP becomes the hub, coordinating referrals to neurology, neuropsychology, geriatrics, or mental health when appropriate.
Once medical and physiological contributors are being evaluated and addressed, the next focus is on gathering background information and detailed cognitive assessment. This may happen in primary care, neurology, a memory clinic, or with a neuropsychologist.
A good dementia evaluation still starts with conversation.
The clinician will likely:
This background information narrative helps differentiate “normal aging,” mild cognitive impairment, dementia, and conditions like depression or sleep disorders that can look like dementia.
In many settings, the clinician will use:
These brief tools flag whether there’s enough concern to justify more in-depth testing.
After the initial medical workup and cognitive screening suggest working with a brain specialist is warranted, a neurologist often becomes involved to further clarify what exactly is causing the cognitive changes.
A neurologist may:
Neurologists are especially helpful when:
Their role is to help refine the diagnosis, guide medical treatment options, and collaborate with the rest of the team.
In some cases, a neurologist may offer neuropsychological evaluation in their clinic, or may refer you to a neuropsychologist.
A neuropsychologist is a psychologist who specializes in understanding how brain changes affect thinking and behavior. When they get involved, you can expect:
Neuropsychological Assessment helps clarify:
A good neuropsychologist will translate all of this into plain language and concrete recommendations for safety, support, and next steps.
As a geropsychologist, my focus is on the emotional, behavioral, and relational side of cognitive change. This often includes:
We also provide therapy for:
Dementia is a condition that affects the individual and the entire family. Therapists who specialize in aging often work with families on communication, conflict around caregiving, and making difficult decisions about driving, finances, and living arrangements.
Dementia affects the individual and the whole family system. Caregiver Family Therapy can help navigate all of the challenges that come with dementia.
Throughout this process, other professionals may become part of the picture:
You don’t need to assemble everyone at once. The PCP can help prioritize which referrals make sense based on the current concerns.
If you’re worried about someone you love and aren’t sure where to begin:
5. Keep notes and collect records as you go. Test results, scan reports, and visit summaries will help you and the team see the big picture over time.
A dementia evaluation is rarely done in a single appointment. It’s often a long drawn out process process that unfolds across providers, conversations, and hard moments. And while the medical and cognitive pieces matter enormously, so does having someone in your corner who understands the emotional weight of all of it.
If you’re a professional, your role matters more than you might realize. Helping families ask the right questions, prepare for each appointment, and process what they’re learning can make the difference between a family that feels lost and one that feels like they have a path forward.
And if you’re a family member reading this: you don’t have to figure this out alone. Start with the primary care provider. Bring your notes. Ask your questions out loud. Take the first step.
Dr. Regina Koepp is a board certified clinical psychologist, clinical geropsychologist, and founder and CEO of the Center for Mental Health & Aging: the “go to” place for mental health and aging. Dr. Koepp is a sought after speaker on the topics of mental health and aging, caregiving, ageism, resilience, intimacy in the context of life altering Illness, and dementia and sexual expression. Dr. Koepp is on a mission to ensure mental health and belonging for older adults, because every person at every age is worthy of healing, transformation, and love. Learn more about Dr. Regina Koepp here.
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